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In this episode Ron chats with Taylor Coffman and Susannah Fox. Here, Taylor discusses her difficult journey battling with a rare disease while being a new mother with an infant. She also dives into the importance of sharing her healthcare challenges with others as a way to give hope and advocate for people similar healthcare issues. Susannah discusses the patient lead revolution she explores in her book “Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care”. She also elaborates on the 4 archetypes she mentions in her book and the different roles they play in the revolution. Susannah offers hope and a roadmap for the way patients can revolutionize the way patients seek and receive care in America.

Taylor Coffman is a multi-hyphenate creative from the east coast. She is the author of the Substack Rare Disease Girl. Her article in the Huffington Post on patient empowerment trended to Number 1 on Apple News. As an actor, Coffman has recurred on HBO’s Silicon Valley directed by Mike Judge, CBS’s Life in Pieces, Rachel Dratch’s Late Night Snack, and has appeared in Ryan Murphy’s FEUD. Behind the scenes, she worked for many years at Jimmy Kimmel Live, one of the nation’s most listened-to NPR stations, KPCC, and in podcasting at LAist Studios. She lives in Santa Monica with her musician husband, Dustbowl Revival’s Zach Lupetin, daughter, and a very needy rescue dog named Sunny.

Susannah Fox is a health and technology strategist. Her book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, was recently published by MIT Press. She is a former Chief Technology Officer for the U.S. Department of Health and Human Services, where she led an open data and innovation lab. She has served as the entrepreneur-in-residence at the Robert Wood Johnson Foundation and she directed the health portfolio at the Pew Research Center’s Internet Project.